Research Ethics and Indigenous Communities
نویسندگان
چکیده
منابع مشابه
Ethics. Protecting communities in biomedical research.
Although for the last 50 years, ethicists dealing with human experimentation have focused primarily on the need to protect individual research subjects and vulnerable groups, biomedical research, especially in genetics, now requires the establishment of standards for the protection of communities. We have developed such a strategy, based on five steps. (i) Identification of community characteri...
متن کاملA Comparative Analysis of Indigenous Research Guidelines to Inform Genomic Research in Indigenous Communities
BACKGROUND: Genetic research has potential benefits for improving health, such as identifying molecular characteristics of a disease, understanding disease prevalence and treatment, and developing treatments tailored to patients based on individual genetic characteristics of their disease. Indigenous people are often targeted for genetic research because genes are easier to study in communities...
متن کاملPrinciples Relevant to Health Research among Indigenous Communities
Research within Indigenous communities has been criticised for lacking community engagement, for being exploitative, and for poorly explaining the processes of research. To address these concerns, and to ensure 'best practice', Jamieson, et al. (2012) recently published a summary of principles outlined by the NHMRC (2003) in "one short, accessible document". Here we expand on Jamieson et al.'s ...
متن کاملSeeking consent for research with indigenous communities: a systematic review
BACKGROUND When conducting research with Indigenous populations consent should be sought from both individual participants and the local community. We aimed to search and summarise the literature about methods for seeking consent for research with Indigenous populations. METHODS A systematic literature search was conducted for articles that describe or evaluate the process of seeking informed...
متن کاملIndigenous communities and evidence building.
Indigenous populations in the U.S. and Pacific Islands are underrepresented in mental health and substance abuse research, are underserved, and have limited access to mainstream providers. Often, they receive care that is low quality and culturally inappropriate, resulting in compromised service outcomes. The First Nations Behavioral Health Association (U.S.) and the Pacific Substance Abuse and...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
ژورنال
عنوان ژورنال: American Journal of Public Health
سال: 2013
ISSN: 0090-0036,1541-0048
DOI: 10.2105/ajph.2013.301522